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Sarah

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Sep 22, 2009
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Comment for Sarah
by: Susan Bisson

Hi Sarah,really good to read your comments and definitely you have my sympathy. As a coeliac myself it is hard enough, as an adult but I am full of admiration for mothers who cope with it in their children and the extra stresses that brings (Iknow of one mother whose son has coeliac, diabetes, diary, egg and nut allergies ( different from intolerance) as well!) But you are right; when Doctors, such as Rodney Ford and others are recognising and treating so many now with Gluten Intolerances(there are more than true Coeliacs I believe!) it is time for a review within the Government's Health Policies and perhaps, with the voice of the medical profession treating this condition joining with those such as yourself, a change can be actioned.

It might interest you to know that even though as Coeliacs we are recognised as having a 'life time & life threatening' condition( I, like many other Coeliacs, also cope with 4 other associated & disabling conditions) the disability allowance given is only up to age 18. Our argument is that this is discrimanatory - this serious condition isn't going to disappear at age 18! An 18 yr old needs even more assistance when probably out flatting or studying and although we are very grateful for our hospital numbers for our flour & pasta( if you like pasta!)there are numerous items we also are not given assistance in. My husband's wage has to pick up the tab for all my disabilities and although I would not deny for a minute the highly paid DR & Lawyer parents of the 12 yr old Coeliac receiving a disability allowance for it, ALL ages should be! As a recognised disability it's not income tested; neither should it be age limited and I agree with you- in a country where there are so many 'Gluten Intolerant'this needs more due given to it from research as to "Why"?? to assistance more readily provided.
Although my understanding of gluten intolerance is that often, as you were lucky enough to find, you can reintroduce gluten to some degree I wonder if research has been done to the potential life threatening risks in this condition as there is for Coeliacs. Perhaps this is where the real difference is, but still one has to wonder that the distressing effects of having gluten still doesn't have a life threatening impact on the bowel in the 'Gluten Intolerant' also.

Good luck Sarah; we all need to support one another in these quests - it's not a matter of Coeliacs being on one page, 'gluten Intolerants' on another; we all are suffering with the consequences and should be entitled to more assistance and more research.
It is good that the Coeliac Society is equally open to providing help and the GF Manufactured Food List booklet is available to Gluten Intolerants as well as Coeliacs.(www.coeliac.co.nz) and of course, As I've found, Lucy at GF Kiwi is great!
All the best,
Susan

Sep 20, 2009
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hi
by: Anonymous

Hi, I'm gluten sensitive and have been living gluten free for 9 months now. I don't know much about young children being picky eaters. [poor you!!!]
I agree, it's really difficult being gluten sensitive and not having coeliacs. If only we got a government subsidy for our food like coeliac sufferers, sigh. The food is SO expensive.

I hope everything works out well for you!

Sep 20, 2009
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Gluten Free Muffins
by: Anonymous

Hi Sarah. Wow I have been gluten free for only 2 months and it is really hard. I also am a Type I diabetic. I cannot begin to understand how hard it is for you with children with a gluten sensitivity.

You may already know of this, however my mum found me a free gluten free book from Bin Inn (Bakels) and it has some really yummy muffin recipes - savoury ones I add all sorts to (feta, bacon, courgette, celery, and I use this as a bread subsitute for me. They are really easy to make to.

Hope this can help

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